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Nerve pain - a zoom call with doctor "hmmmmm"


Yuzuf Paradizo

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Nine months waiting for an appointment at the pain clinic, with 'one of the top pain specialists in the country' 

Like a corkscrew in my head, face, head, neck and shoulders a clusterfuck of nerve pain, migraines, 'eye'graines, right side' 'normal', left side an unbounded inner space of electrical nerve storms raging around. Reading, writing, watching - all nauseating - aaargh

Then there's the meds, 600mg pregablin, like life behind glass, emotionally deadened, stupified. 30/500 Cocodamol year in year out, so harmful to the liver.. 

"So how are you feeling?" she asks

All of the above - I reply, "..and I'm worried about the meds" 

"Hmmmm" she says

"Cannabis helps" I tell her, "I was able to get a nice piece of hashish a couple of weeks ago, Morrocan, it was like instant balm and relief, not a cure but very much less pain, like nothing else really, and some pleasure. Can I be honest, growing a steady supply isn't always possible and buying is erratic and expensive, I'm thinking of applying to one of the private clinics and wondered what you'd recommend?"

"Hmmmm" she said "we don't recommend. It may make you demented in ten years and you wouldn't want that." 

"What?" I said "I'm no stranger to Cannabis and I've never heard that." 

She sighed - "No, we don't recommend, we'll try you on Bustrans, synthetic transdermal opioid patches and change the Pregabs to Gabapentin. Okay. Speak to you in a few months and see how it goes.."

Hmmmmm - goodbye doctor. 

 

Edited by Yuzuf Paradizo
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I feel for you man, had same situation with the pregabs and gabas, and blinkered doctors, since growing my own supply I haven't touched any of the doctor prescribed stuff, for some strange reason when I questioned doctor about how codeine etc says don't take for more than 3 days so how come I was on them for 10 years, don't worry about it I'm the doctor not you was the unsatisfactory reply. Pills mess you in the head in so many ways, my elder sister has same condition as me and dribbles in the chair all day with a morphine patch, never going that route, even started reading up in the edibles forums for some interesting alternatives to my beloved joints, and I recently attended a pain management course which was run by a semi retired practitioner that had started her careerin the 1960s getting as many people as possible onto opiates, and was ending her career getting as many people as possible off of opiates. I hope you find the right strains etc best suited to deal with your pain man, personally I only go to see my doctor as a last option now, lost all faith in their pill pushing ways, that's the only reason I grow, I don't tell or sell and couldn't afford to buy the amount I smoke, :)

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6 hours ago, Should Know Betterer said:

t how codeine etc says don't take for more than 3 days so how come I was on them for 10 years, don't worry about it I'm the doctor not you was the unsatisfactory reply

22 years for me, dereliction of duty by medical practitioners just to get paid :fart:

 

Fuck em, grow your meds

:yinyang:

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Thank you for your fulsome reply mister. 

Glad that the cheeba helps you and I hope your sister finds a better means of sorting her pain. To be honest it's as much a way off the meds as a way out of pain that's going to get me growing again..Go easy 

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7 hours ago, Yuzuf Paradizo said:

 

Hmmmmm - goodbye doctor. 

 

Was there, most frustrating is to visit a specialist and he says 'what am I to do here,why they sent you" then neurologist; what am I to do? Didn't even picture my head on MR,just told me to follow her finger with my eyes and knocked on my knees,0 effort. Am I couldn't faking see, pupils dilating for no reason and stuck like that like am on X,for 2 years.

Went mental mate,keep looking for better doc IMO. I hate that here's a bunch of pills and see you in a year shit

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I have actually found the Wim Hof breathing and cold showers approach very helpful in recent months. 

Cold showers have to be approached with caution if there are any heart conditions and first moments never fail to be bracing, but soon it is quite ecstatic in itself and literally freezes away, or at least reduces, my soreness for a few hours. 

The breathing as well allows for some very interesting inner states and energies to work with the pain signals and the pain seems to become more malleable. 

Worth a go. 

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Sorry to hear it mate, it can be so frustrating getting anywhere with the doctors when it comes to cannabis and very expensive if you go private. Not sure where to find them, or if they're still operating but there where a bunch of very kindhearted souls that where distributing medical cannabis (mainly RSO) for free to people in need, it's just a case of connecting with them. If you know of amy local collectives/clubs they might be able to point you in the right direction. 

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its really quite surprising just how incompetent a lot of doctors are. you can only blame them so much, they are trained to buy into the whole pharmacutical brain washing, i did read that they get kickbacks from certain big pharma for prescribing thier meds but dont know how true that is tbh.

the meds you mention are all worse than cannabis long term, the gaberpentin twists your mind, id keep clear of it. Same with the morphine patches, how they can say thats better than cannabis is beyond me. These bastards are responsible for more opiate addicts than street dealers. 

 

steer clear, and keep searching till you find a decent doctor. 

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Just now, badbillybob said:

Same with the morphine patches, how they can say thats better than cannabis is beyond me.

 

Its madness, people don't bat an eyelid at me munching a handful of what is essentially heroin everyday but God forbid I smoke a bit of weed instead.

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@MindSoup its ridiculous, people just can't understand why I have chosen to not go on things like gaberpentin and use weed instead for my back! Madness really how fucked the perception of modern medicine can be.

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5 hours ago, badbillybob said:

did read that they get kickbacks from certain big pharma for prescribing thier meds but dont know how true that is tbh.

 

 

Used to be very true but with current regulations it's pretty hard to even buy a doc a sandwich, never mind fly them to the Caribbean like they used to!

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Thank you so for any interest my friends :king:- Los maestros de la marihuana - :king:  it is good to feel understood for once...

 

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  • 2 weeks later...
On 3/9/2022 at 1:00 AM, Should Know Betterer said:

 even started reading up in the edibles forums for some interesting alternatives to my beloved joints

 

Have you looked into making capsules with decarboxylated weed? I started using them recently and they are a revelation. Obviously you don't get the instant relief that you get with a joint, but, when they do finally kick in, I feel really relaxed, and the majority of my pain disappears, I also sleep really well. 

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@Arbre Medicinalfunny you say that, I have but only recently,  since finding this site, my consumption of meds has been transformed,  and I've been able to reach out to a couple of elder people close to me with decarbed capsules for their arthritis, and I could also recommend @joolz easy yoghurt recipe for a good night's sleep and a nice couple of hours in the evening.  The irony of it I'd that until my order for capsules from the bayeee place arrives I've been tiping the evil shite in doctors caps down the sink and re using the caps for the forces of goodness hehe, I'm currently reading up how to make oils which hopefully current grow will produce. Been growing 10+ years, my only regret is that being a bit of a natural Ludite I didn't discover UK420 til I'm in my 50s, so much to learn so much to try so much good knowledge given freely by mostly good people and as I said its totally changed my self medication. Have you tried different temperatures and cooking times with the decarbs? I found with a bit of experimenting I can produce "mmmm that's niiiiiice" all the way to "face melting" caps depending on what I feel I need at the time. 

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