Plan C Posted December 23, 2012 Share Posted December 23, 2012 i woulndnt hesitate to advise another dose in the daytime , if last nights dose has wore off so to speak me personally would top up , as it seems to have had the desired effect would also be easier to monitor there relive maybe a half dose if needed :yinyang: i tend to agree, do u think u could split the doses up to twice aday? 2 Link to comment
grooving Posted December 24, 2012 Author Share Posted December 24, 2012 Day 2 Another great night's sleep was had last night and they didn't look hungover like they have in the past when given meds like Calcold/Calpol Night (both now discontinued). They have had just one spasm all day and this was mild and only lasted a few seconds. It's early days but their overall tone seems more relaxed and no negative side-effects have been witnessed. No need to double up yet on the dose since the <0.1g of oil per suppository is having such a positive effect! 8 Link to comment
Tony Montana Posted December 24, 2012 Share Posted December 24, 2012 Fantastic News rubba mate So there really is a Santa You can be proud of yourself bro T, x 3 Link to comment
grooving Posted December 24, 2012 Author Share Posted December 24, 2012 It's made everyone's Christmas much more enjoyable Tony. Their carers say the only downside so far of the cocoa butter and oil suppositories is that if you don't get it in quickly it melts so fast on your finger-tips a second pass can be tricky. They lost a little this way when giving them their 3rd dose tonight so fingers-crossed they got enough. Prepare the position properly before attempting! This is where the gelatin capsules might be better since they last a little longer before melting on skin. I'll have some of these soon to experiment with. 6 Link to comment
Jiffa Posted December 24, 2012 Share Posted December 24, 2012 is that from frozen bro or in the fridge , is there any caps you could by from the chemists and empty the contents ? 2 Link to comment
mslazy Posted December 24, 2012 Share Posted December 24, 2012 can ya sum how freeze it into an ice cube or sumthing ? 1 Link to comment
stu sleeper 20vt Posted December 24, 2012 Share Posted December 24, 2012 can ya sum how freeze it into an ice cube or sumthing ? Wouldn't fancy shoving an ice cube up me jacksy The worlds a better place for someone thanks to you rubba. Top work. 4 Link to comment
mslazy Posted December 24, 2012 Share Posted December 24, 2012 ye obv not a full ice cube but a smaller friendlier shaped pellet ? shall we say gd few mm ice i think is worth exploring 3 Link to comment
tico cervantes Posted December 24, 2012 Share Posted December 24, 2012 Thank you for sharing your story and helping your friend in this way. It's very brave of you to have raised the idea with his carer and amazing that he has a carer that is willing to try. I remember seing that video clip before. Can't remember were but it was a few years ago at least. Tell your friend that im thinking of him and wish him well in his new treatment. Cheers tico. 1 Link to comment
Guest Soberman Posted December 24, 2012 Share Posted December 24, 2012 All the best with your plans, take care be safe and it's a heart warming story for Xmas eve. 1 Link to comment
Plan C Posted December 24, 2012 Share Posted December 24, 2012 well thats put a smile on my face nice one rubba 1 Link to comment
Tony Montana Posted December 24, 2012 Share Posted December 24, 2012 I hope to help one day 1 Link to comment
grooving Posted December 25, 2012 Author Share Posted December 25, 2012 Day 3 Last night their carers lost a little when giving them their 3rd dose. This translated into a slightly more restless night than the previous nights with a couple of awakenings and a few mild spasms. Still much better than before though. Their carers are annoyed they cocked up this dose so in future my friend will be better positioned before the suppository is inserted. Some other good news: After the last few days and even with last night's slightly less effective dose their carers have decided to reduce their daily steroid dose to alternate days. If the positive effects continue the steroids may be discontinued altogether. These suppositories are kept in the fridge. @Jiffa @mslazy: If they were kept in the freezer wouldn't they burn when being put in or because they are so small melt super-fast before inflicting damage? My friend squirms a little with the refrigerated suppository so I'd imagine a frozen one would be even more uncomfortable! 4 Link to comment
Jiffa Posted December 25, 2012 Share Posted December 25, 2012 (edited) how about bro if you was to get a cod liver oil cap and empty the case and use half of this capsule as a lil cap for the suppositiry ?? would that work do you think? amazing news about the roids bro :yinyang: now i this is a mad suggestion its not mine but my mrs suggested this she says check a thrush cream applicator thing may help it not melt ??? easy to get from chemist to Edited December 25, 2012 by Jiffa 5 Link to comment
Plan C Posted December 25, 2012 Share Posted December 25, 2012 wonderfully positive results rubba 1 Link to comment
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