[happydaze]

tigseyjnr, on 10 March 2012 - 10:42 AM, said:

happydaze, on 10 March 2012 - 10:06 AM, said:

thanks for then replys
'mellatonin tried it and he laughed it off, also tried (fennagen) spelt wrong but that had no impact neither
doctors have said theres another option but its a hardcore knockout your sleepin drug which the side affects are not good i aint willing to go there
we deal with it but its just been a bad sleeping week
never heard of glycerine tincture i'll google and have a read thanks

cant believe your doctor said that. go to someone else. i'm no hippy who avoids all medicine, but that is just the voice of an ignorant doctor!!!!!!!! GP or specialist? i hope he was a GP, slightly forgiven if that's the case.

the doctors didn't advise it they said thats the only thing left but the did strongly agree not to go there, they have not pushed us in any way to drug him
i personally avoid doctors and tablets and meds

[cf]

here you go My linkhttp://www.letfreedomgrow.com/cmu/SamsStory.htm

[tigseyjnr]

happydaze, on 10 March 2012 - 10:56 AM, said:

tigseyjnr, on 10 March 2012 - 10:38 AM, said:

hi there.

i'm no expert, but i do manage/work in care homes for young people with autism and assosiated difficulties and have done for a few years now.

obviously i dont know the in's and out's of your son, but with alot of people who have autism and hyper/over activity, sedatives actually have the opposite affect, same as stimulants.

sounds mad, but sometimes a stimulant will actually help to 'calm' someone down.

personally, i'd avoid the medicine route as much as physically possible, especialy as a child. one drug might solve one problem, then lead to many other's, usually worse than being a bit hyper. then more drugs get added to the mix to solve the new probs. madness. it's another americanism we really do not need!

start with diet. i know it's gona be hard with a child that young, but in my experience, diet is the best starting point.

keep a diary of everything he eats, and alongside it, keep a diary of mood/behaviour etc. see if there are any patterns.

avoid the obvious, sugar, caffeen, genrally crap processed foods, but also target specific groups like dairy and wheat. try not feeding him one of those groups for a week. it might not help, but it often does.

there's no quick way round this i'm afraid, trial and error, and keep adiaries of everything, but i have personally helped young adults come off all those bloody med's using diet and simple self calming techniques (with alot of unhelpfull doctors and psychiatrists advising against it, only to have totally eaten thier words). Bare in mind i work with the extreme end of the spectum too. non-verbal, severe learning difficulties. some can be pretty violent - biting, punching, hair pulling etc. some of these behaviours will never change, but they are SO much calmer and happier without all those med's

i'll be back to look in on this one. feel free to fire any questions back.

one thing i would like to say, is you are not alone! get as much advice and help from other parents etc. dont mean to point out the obvious, but do you know about NAS? National Autistic Society? it's a great resource, use them!

Tigs.

thanks and thats the route i want no meds
my son is extreme end of the spectum too we've been seeing docs for about a year now and the help we get is more than we ask for they've been great, we realise we are not alone we know quite afew parents of kids with autism problem is we've found no two are alike
the diet route keeps popping up milk, cheese, dairy products is something hes never took to, meal times can get stressful he eats want he wants to eat its quite funny he has four licks to check what it is than if he likes he eats if not he doesnt

four licks, make perfect sense. ha, ha.

i completly understand, although you've definitly got your work cut out for you both. you have my admiration, support and best wishes. and your are right, i'm yet to meet anyone with the same 'symptoms' of autism. it's such a vast spectrum.

stick with the diet as a base to work from. i try to do so with everyone who comes into my care (can be very difficult in a culture where staff cant even eat and cook properly, let alone educate others to do so too!).

i think of diet as similar to temps with growing skunk. no point looking at other solutions to a problem, untill you've got that sorted and suited to him.

we have created an environment in which people with autism struggle. if you taylor the environment to suit the individual, it can have great affect.

think of sensory overload and sensory stimuation. this is another big factor, learn the specifics for your son. if he's waking up and 'in a rage' think what he might be waking up to that he doesn't like. certain lighting is calming, ceratin sounds are too (some people wear red or green glasses as it reduces sensory input, some people wear headphones with just radio hiss to drown out other noise), or it might just be he doesn't know where he is or where u are, or why he's no longer asleep!?! try photo's in his room/bed, or tapes of your voices.

in my experince, consistancy is key too. in fact, sometimes it's better to do things consistantly wronge, than occasionally right.

routines are essential.

it's gona be harder for you if he doesn't speak, so start using makaton and widgit asap.

sorry, i could go on all day.

[happydaze]

tigseyjnr, on 10 March 2012 - 11:18 AM, said:

happydaze, on 10 March 2012 - 10:56 AM, said:

tigseyjnr, on 10 March 2012 - 10:38 AM, said:

hi there.

i'm no expert, but i do manage/work in care homes for young people with autism and assosiated difficulties and have done for a few years now.

obviously i dont know the in's and out's of your son, but with alot of people who have autism and hyper/over activity, sedatives actually have the opposite affect, same as stimulants.

sounds mad, but sometimes a stimulant will actually help to 'calm' someone down.

personally, i'd avoid the medicine route as much as physically possible, especialy as a child. one drug might solve one problem, then lead to many other's, usually worse than being a bit hyper. then more drugs get added to the mix to solve the new probs. madness. it's another americanism we really do not need!

start with diet. i know it's gona be hard with a child that young, but in my experience, diet is the best starting point.

keep a diary of everything he eats, and alongside it, keep a diary of mood/behaviour etc. see if there are any patterns.

avoid the obvious, sugar, caffeen, genrally crap processed foods, but also target specific groups like dairy and wheat. try not feeding him one of those groups for a week. it might not help, but it often does.

there's no quick way round this i'm afraid, trial and error, and keep adiaries of everything, but i have personally helped young adults come off all those bloody med's using diet and simple self calming techniques (with alot of unhelpfull doctors and psychiatrists advising against it, only to have totally eaten thier words). Bare in mind i work with the extreme end of the spectum too. non-verbal, severe learning difficulties. some can be pretty violent - biting, punching, hair pulling etc. some of these behaviours will never change, but they are SO much calmer and happier without all those med's

i'll be back to look in on this one. feel free to fire any questions back.

one thing i would like to say, is you are not alone! get as much advice and help from other parents etc. dont mean to point out the obvious, but do you know about NAS? National Autistic Society? it's a great resource, use them!

Tigs.

thanks and thats the route i want no meds
my son is extreme end of the spectum too we've been seeing docs for about a year now and the help we get is more than we ask for they've been great, we realise we are not alone we know quite afew parents of kids with autism problem is we've found no two are alike
the diet route keeps popping up milk, cheese, dairy products is something hes never took to, meal times can get stressful he eats want he wants to eat its quite funny he has four licks to check what it is than if he likes he eats if not he doesnt

four licks, make perfect sense. ha, ha.

i completly understand, although you've definitly got your work cut out for you both. you have my admiration, support and best wishes. and your are right, i'm yet to meet anyone with the same 'symptoms' of autism. it's such a vast spectrum.

stick with the diet as a base to work from. i try to do so with everyone who comes into my care (can be very difficult in a culture where staff cant even eat and cook properly, let alone educate others to do so too!).

i think of diet as similar to temps with growing skunk. no point looking at other solutions to a problem, untill you've got that sorted and suited to him.

we have created an environment in which people with autism struggle. if you taylor the environment to suit the individual, it can have great affect.

think of sensory overload and sensory stimuation. this is another big factor, learn the specifics for your son. if he's waking up and 'in a rage' think what he might be waking up to that he doesn't like. certain lighting is calming, ceratin sounds are too (some people wear red or green glasses as it reduces sensory input, some people wear headphones with just radio hiss to drown out other noise), or it might just be he doesn't know where he is or where u are, or why he's no longer asleep!?! try photo's in his room/bed, or tapes of your voices.

in my experince, consistancy is key too. in fact, sometimes it's better to do things consistantly wronge, than occasionally right.

routines are essential.

it's gona be harder for you if he doesn't speak, so start using makaton and widgit asap.

sorry, i could go on all day.

thanks again the waking rage problem i thought he might be having bad dreams but without talking to us he can't tell us life's a big guessing game
been reading up on the ipad or other branded tablets for expressing voice tried picture cards not interested at all, i do think comunication with him would help him millions

[tigseyjnr]

communication is gona be a huge help, but it'll be in his own way,, and in his own time.

just so you know, i know of kids who didn't speak till they were 5/6, then just started speaking - fluently.

another who only spoke to his mum (genius)

like you say, no two the same though.

the fact that you are on here seeking advise, shows you care, and that'll go a long way too

to answer your first question, i dont think cannabis will help in the future. there's way too much going on in an autistic mind, i think, add being stoned to the mix, and it could go either way.

stick with the picture cards. gona be a slow process, but keep trying. try photo's as well as widgit pictures. try different coloured txts, on different backgrounds. and dont forget to put it all in a diary. and dont just give up on something that doesnt work straight away. go back to things, try them in a different way.

sorry if i'm pointing out the obvious.

[happydaze]

cf, on 10 March 2012 - 11:14 AM, said:

here you go My linkhttp://www.letfreedomgrow.com/cmu/SamsStory.htm

cheers i had a little scan through that then started a search on 420 and found very little thats why i posted a view on the subject

[happydaze]

tigseyjnr, on 10 March 2012 - 11:46 AM, said:

communication is gona be a huge help, but it'll be in his own way,, and in his own time.

just so you know, i know of kids who didn't speak till they were 5/6, then just started speaking - fluently.

another who only spoke to his mum (genius)

like you say, no two the same though.

the fact that you are on here seeking advise, shows you care, and that'll go a long way too

to answer your first question, i dont think cannabis will help in the future. there's way too much going on in an autistic mind, i think, add being stoned to the mix, and it could go either way.

stick with the picture cards. gona be a slow process, but keep trying. try photo's as well as widgit pictures. try different coloured txts, on different backgrounds. and dont forget to put it all in a diary. and dont just give up on something that doesnt work straight away. go back to things, try them in a different way.

sorry if i'm pointing out the obvious.

we have a care worker lady that see's him weekly that deals with autism and shes been a massive help with the info shes given us pretty much what your saying.
hes currently on no meds and thats the way i want it
i dont think its advice i really wanted i should rename it info

[tigseyjnr]

[/quote]
we have a care worker lady that see's him weekly that deals with autism and shes been a massive help with the info shes given us pretty much what your saying.
hes currently on no meds and thats the way i want it
i dont think its advice i really wanted i should rename it info
[/quote]

sorry, i'll stop going on. once i get started

sounds like you're on the right track then.

just know that no matter what, you are blessed. Tigs

[happydaze]

[/quote]
we have a care worker lady that see's him weekly that deals with autism and shes been a massive help with the info shes given us pretty much what your saying.
hes currently on no meds and thats the way i want it
i dont think its advice i really wanted i should rename it info
[/quote]

sorry, i'll stop going on. once i get started

sounds like you're on the right track then.

just know that no matter what, you are blessed. Tigs
[/quote]
yea blessed alright all he has to do is smile nicest smile in world

[fredaweed]

Don't know if anyone mentioned already that there is a canna and autism group on fb, 3 is a bit too young to be diagnosed with autism too tbh.

Have you thought about learning makaton with your child? It's really simple sign language (mr tumble, singing hand's ect) , Young kids pick it up really easily. My son learned from four months and it really helped him to communicate more easily with us, meaning less frustration at not being understood, we still have a headbanger though. Must just be a three year old thing eh?

Lack of sleep is a bastard too, I just drive mine to sleep in the car. Waking up often in the evening is night terrors, loads of kids suffer from this, its apparently a phase, I just ignore mine when he does it, or put his favorite dvd on til he goes back to sleep, any interaction makes him scream more. Its hard to ignore him when he is upset but he aint really awake iykwim.

[komodod]

happydaze, on 10 March 2012 - 11:55 AM, said:

cf, on 10 March 2012 - 11:14 AM, said:

here you go My linkhttp://www.letfreedomgrow.com/cmu/SamsStory.htm

cheers i had a little scan through that then started a search on 420 and found very little thats why i posted a view on the subject

thats a bullshit story anyone who gives a narcotic to a child who is underage needs locking up. playing with medicating yourself or kids is no joke. and definately shouldnt be promoted here.

[mr_mollasses]

I don't know much about autism etc, but can you not talk to your doctor about possibly trying sativex ?

[Boojum]

komodod, on 10 March 2012 - 09:42 PM, said:

happydaze, on 10 March 2012 - 11:55 AM, said:

cf, on 10 March 2012 - 11:14 AM, said:

here you go My linkhttp://www.letfreedomgrow.com/cmu/SamsStory.htm

cheers i had a little scan through that then started a search on 420 and found very little thats why i posted a view on the subject

thats a bullshit story anyone who gives a narcotic to a child who is underage needs locking up. playing with medicating yourself or kids is no joke. and definately shouldnt be promoted here.

Bullshit yourself, if you're gonna make stupid statements like people need locking up perhaps you should at least get the terminology right first - regardless of the legal status in many countries, medically and chemically cannabis is not a narcotic

Would you give your child an aspirin if he/she had a headache ? Well then you are irresponsible and need locking up, more people have died from taking aspirin than have died from cannabis.

Have you ever given your kids Calpol ? HOW DARE YOU, paracetamol kills loads of people every year.

Have you ever given your kids cows milk ? YOU EVIL FUCKER - cows milk has killed more people than cannabis has.

Need I go on ?

[oldsalty]

You have my full sympathy.My eldest son was diagnosed with autistic spectrum disorder at age two.I was in the jail at the time he was diagnosed as I had been caught with a large amount of cannabis.Cut a long story short,myself and his mum were beside ourselves with worry but point blank refused to put him on any meds and just put up with the temper tantrums,sleepless nights etc etc.Now he is 16,leads a pretty normal life and likes the weed.There is no easy answers and no two cases are the same but it does get easier with time.I wish you and your family all the best and hope you find what you are looking for.

Salty

[happydaze]

fredaweed, on 10 March 2012 - 09:01 PM, said:

Don't know if anyone mentioned already that there is a canna and autism group on fb, 3 is a bit too young to be diagnosed with autism too tbh.

Have you thought about learning makaton with your child? It's really simple sign language (mr tumble, singing hand's ect) , Young kids pick it up really easily. My son learned from four months and it really helped him to communicate more easily with us, meaning less frustration at not being understood, we still have a headbanger though. Must just be a three year old thing eh?

Lack of sleep is a bastard too, I just drive mine to sleep in the car. Waking up often in the evening is night terrors, loads of kids suffer from this, its apparently a phase, I just ignore mine when he does it, or put his favorite dvd on til he goes back to sleep, any interaction makes him scream more. Its hard to ignore him when he is upset but he aint really awake iykwim.

hi, all that sounds so similer lost interest in tumble bout a year ago and any hand signs went out the window pretty much the same day, mrs daze does the fb groups and the dvd at night we must have every dvd out. during the day we cope with anything it's all bout the sleeping