A Letter To People Without Chronic Pain
#61
Posted 10 August 2011 - 01:26 AM
http://www.who.int/m...r7WithAnnex.pdf
WHO report, April 2011...
"Look, we understood we couldn't make it illegal to be young or poor or black in the United States, but we could criminalize their common pleasure. We understood that drugs were not the health problem we were making them out to be, but it was such a perfect issue...that we couldn't resist it." - John Ehrlichman, White House counsel to President Nixon on the rationale of the War on Drugs.
"[Nixon] emphasized that you have to face the fact that the whole problem is really the blacks" Haldeman, his Chief of Staff wrote, "The key is to devise a system that recognizes this while not appearing to."
#62
Posted 27 August 2011 - 08:43 PM
such a good post
peace my friend.
#63
Posted 29 August 2011 - 06:34 AM
I've had to stop taking meds in the last 6 months because they were making things worse, it was getting worse anyway and now without any meds at all I find even making a cup of tea or having a shit is a total fucking nightmare. There is no way it's self inflicted, I got the trigger gene from my mothers side of the family.
Try having a disease from head to foot and having day in day out pain for 10 - 15 years, trying to work until you physically can't anymore. Then try and comprehend pain so big and nasty that it changes your personality so badly it's hard to meet strangers as they all think you're fruit loop.
Chronic pain is severe pain that lasts a very long time. Saying it is self inflicted may cause offence to some people.
#64
Posted 29 August 2011 - 07:58 AM
I_L_M_G, on 29 August 2011 - 06:34 AM, said:
ILMG
I agree with mostly everything in your post except this.
Chronic pain is pain that fails to respond to normal analgesia and which is experienced daily. It may or may not be severe pain. Severe and chronic pain are two different things. Most chronic pain is less than severe, although it may have severe "peaks". But mainly, chronic pain is simply any pain that fails to respond to normal treatments. and which is intractable. The strength of the pain varies from case to case, however, and is no marker of the "chronic" nature of the pain itself.
Like most folks, my experience is that I have continual background pain(s) which is managed by drugs, with severe peaks that may or may not respond to further analgesia.
You have my heartfelt sympathy, it sounds like you are mostly in severe pain. That must be a complete bitch to handle, I admire your fortitude, and wish you every possible relief.
#65
Posted 20 September 2011 - 08:02 AM
http://www.internati...rting.org/pain/
More than half the countries in the world have little to no access to pain medications, the result of bureaucratic hurdles and the chilling effect of the global war on drugs. We traveled to India, Ukraine and Uganda to put a human face on just some of the millions of patients around the globe forced to suffer long-term illnesses in excruciating pain.
"Look, we understood we couldn't make it illegal to be young or poor or black in the United States, but we could criminalize their common pleasure. We understood that drugs were not the health problem we were making them out to be, but it was such a perfect issue...that we couldn't resist it." - John Ehrlichman, White House counsel to President Nixon on the rationale of the War on Drugs.
"[Nixon] emphasized that you have to face the fact that the whole problem is really the blacks" Haldeman, his Chief of Staff wrote, "The key is to devise a system that recognizes this while not appearing to."
#66
Posted 20 September 2011 - 08:20 AM
#67
Posted 20 September 2011 - 06:59 PM
This post has been edited by medden: 20 September 2011 - 06:59 PM
#68
Posted 20 September 2011 - 08:04 PM
grandad, on 20 September 2011 - 08:20 AM, said:
errr
"Look, we understood we couldn't make it illegal to be young or poor or black in the United States, but we could criminalize their common pleasure. We understood that drugs were not the health problem we were making them out to be, but it was such a perfect issue...that we couldn't resist it." - John Ehrlichman, White House counsel to President Nixon on the rationale of the War on Drugs.
"[Nixon] emphasized that you have to face the fact that the whole problem is really the blacks" Haldeman, his Chief of Staff wrote, "The key is to devise a system that recognizes this while not appearing to."
#69
Posted 21 September 2011 - 08:39 AM
grandad, on 20 September 2011 - 08:20 AM, said:
20 years I've had daily sciatic pain. It doesn't go away, not long term. You are lucky as well as mad.
2 Panadol?? Make me larff.... Not! It would seem that you really haven't a clue about chronic pain fella, not a single solitary clue!
2 Panadol? Ye gods and fallen angels, what's that for, a tickle in your pinky?? When you have your Sciatic nerve snagged neatly on some crazy bony growth, or you have a bit of a Trigeminal thing going down, then believe me - 2 Panadol is just not going to cut the mustard, I'm afraid
And the strongest pain killer is ... well, try Carfentanil, or if that's not enough, Etorphine. Now they really will turn down that headache for ya!! They both make Diamorphine (Heroin) seem like an Aspirin.
#70
Posted 01 December 2011 - 12:39 PM
I have recently started on morphine and it helps more than the tramadol did but the pain is still intolerable a lot of the time causing me an inability to sleep which in turn makes my related problems worse. I get off my mother that I need to get out of the house more, get a job, stop feeling sorry for myself and I beat myself up about it constantly. Mr S is an angel, he truly is and I am blessed, I just wish that those who think we need to 'pull ourselves together' could read this and understand.
The simplest of tasks to a healthy individual are mammoth things to me. Getting a shower and getting dressed wipes me out, I then feel the need to go and lie down and take top up pain relief, which isnt always possible. Yet some view me as lazy and unmotivated, being trapped in a body that doesn't work and causes chronic and often severe pain, whilst the mind wants to be out there living their life to the max is really quite distressing.
All I can say is I am the luckiest woman alive having Tremont by my side on this journey.
#71
Posted 30 March 2012 - 08:45 AM
#72
Posted 15 July 2012 - 11:37 AM
People don't get it and I often do things with friends and family and know I'm going to suffer for days after but I am now learning to except it and say no, but it doesn't guarantee no pain.
However smoking is helping relax my muscles which helps with my pain.
Thanks for putting this up here, great piece of writing :-)
#73
Posted 07 September 2012 - 08:49 AM
#74
Posted 23 October 2012 - 09:34 PM
I was born with Ehlers Danlos Syndrome that's a genetic disorder that effects 90% of your body. Chronic pain is my life. I have recently had injections in my spine so I don't feel half my back now, but it still leaves everywhere else. My doctors good, but I am on top doses of anti spasmodic drugs and OxyContin. He can't put that up any more or there would be no where fo me to go as my body deteriates.
I smoked canabis when I was younger, but now I am thinking it is my answer..... Not sure what the hell to go forward with this - hence i am here...but I think it would help.... Christ this life couldn't get any worse

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